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Dataset Directory: Repository Profile

Repository: National Institute of Child Health and Human Development Data and Specimen Hub (NICHD DASH)

Basic Information
Repository Full Name National Institute of Child Health and Human Development Data and Specimen Hub
Repository Acronym NICHD DASH
General Theme or Special Population

Children/Youth

Summary

NICHD DASH is a centralized resource for researchers to store and access de-identified data from NICHD-funded research studies for  secondary research use. It is a mechanism for NICHD-funded investigators to share research data from studies in accordance with NIH Data Sharing Policies. Many of the NICHD-funded research studies also collected biospecimens that are stored in the NICHD Contracted Biorepository. To provide access to these biospecimens, NICHD DASH stores and make available to other investigators the biospecimen catalog for studies that have associated research data in NICHD DASH. By supporting data and biospecimen access through NICHD DASH, NICHD aims to accelerate scientific findings and improve human health.

Key Terms

Children/Youth, Child health, Child development, Environmental factors

Sponsoring Agency/Entity

National Institutes of Health (NIH)

National Institute of Child Health and Human Development (NICHD)

Datasets Information
Data Type(s)

Survey, Biomarkers, Environmental exposure measures

Continent(s)

International

Countries

International

Strengths and Limitations
Strengths

Well designed, easy to navigate, and informative repository with clear tutorials regarding use.

No account required to browse or search for study data stored in NICHD DASH; however, an account is required to submit or request study data and download study documentation.

A wide variety of biospecimens collected in a number of the repository studies can be requested.

Interface provides consistent information across studies regarding design and study population (sex, life stage, ethnicity, race, location).

Limitations

Limited to only NICHD-funded research studies.

Data Repository Details
Primary Website

https://dash.nichd.nih.gov/

Repository Tools

DASH Tutorial Provides detailed instructions on all aspects of DASH.


Data Explorer allows filtering by:

  • Topic
  • Study Type
  • Research Networks and Initiatives
  • Subjects by Sex
  • Subjects by Life Stage
  • Subjects by Ethnicity
  • Subjects by Race
  • Subjects by Location

Biospecimen Explorer allows filtering by:

  • Search by Subject ID
  • Search by Sample ID
  • Type
  • Biological Macromolecule
  • Donor Sex
  • Donor Race
  • Donor Ethnicity
  • Preservation Type
  • Use Restrictions Based on Consent

Documentation Explorer allows filtering by:

  • Study Name
  • Topic
  • Study Type
  • Research Networks and Initiatives

Data Submission Requirements

Limited to only NICHD-funded research studies. An account (free registration) is required to  submit study data.

Data Submission Process

https://dash.nichd.nih.gov/resource/submission

Data Access

Free account registration is required to  request study data and download study documentation.

Data Access Requirements

Data Use agreement, No cost

Documentation & Resources
Technical

DASH Tutorial:

https://dash.nichd.nih.gov/resource/tutorial

Other Papers

DASH, the data and specimen hub of the National Institute of Child Health and Human Development

https://www.nature.com/articles/sdata201846

Helpful Links

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Contact Information

Northeast ADA Center
Yang-Tan Institute on Employment and Disability
Cornell University, ILR School
201 Dolgen Hall
Ithaca, NY 14853

Phone: 800-949-4232 (Voice, TTY & Spanish in New York, New Jersey, Puerto Rico and the US Virgin Islands)
In other areas: 607-255-6686 (Voice, TTY, Spanish)

Email: disabilitystatistics@cornell.edu

Accessibility Statement

About Us

The goal of the Northeast ADA Center is to educate and empower all ADA stakeholders throughout New York, New Jersey, Puerto Rico, and the US Virgin Islands to increase their knowledge of the ADA and to support them to include people with disabilities in local communities and to implement the ADA in their own lives, workplaces, businesses, and communities.

The Northeast ADA Center is a member of the ADA National Network funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR grant number 90DPAD0003). We provide information, guidance, and training on implementation of all aspects of the ADA. Our center is located at the Yang-Tan Institute at Cornell University’s ILR School. Our staff consists of individuals with and without disabilities who have extensive experience in the disability field.

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